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Showing posts from 2022

Long Covid, POTS, and Restricted Lung Disease - Rehab Update

 Hey everyone!  It's taken a little longer to post than I would have liked. We had a couple colds and the stomach flu plague our house last month and I'm just not starting to feel more human. So a lot has happened since my last post. My primary doctor figured out that I had covid at some point. I've always felt like this is why all my symptoms and everything got worse but I didn't have proof. If I had to pinpoint when I got covid it was in March of 2020. That's pretty much when things went downhill. If you've had covid or think you might have had covid and are having crazy symptoms I implore you to look into dysautonomia. It might be a huge piece of the puzzle you are missing. I was diagnosed with POTS which is a form of dysautonomia and by bringing my HR down to a more reasonable level the brain fog lifted and I've felt much better. I still fight hypertension 10-14 days a month but I was fighting issues 100% of the time. I was just glad to get somewhat of a

Pulmonary Rehab

Hey everyone! I've been thinking about the different ways I can take my blog. Since my life has slightly changed in the past couple of years I think I'm going to start doing maybe some movie reviews or something like that. So stay tuned for that. I think I'm also going to start documenting my pulmonary rehab so here it goes.  So my first day of rehab wasn't too bad. I got to work out for 15 minutes on a Nuway recumbent step bike. I really like it a lot more than the regular recumbent pedal bike I have at home. After 15 minutes, we went to another room for education purposes. We got to learn about the different types of inhalers. I already knew quite a bit about them but there were a few key takeaways. Using a spacer is much more efficient. Then the next day my body decided to be what I like to call potsie(my Postural Orthostatic Tachycardia Syndrom for those of you new here). It was Friday so my family and I decided to travel about an hour to another town because they h

Living with Chronic Illness(POTS/Dysautonomia & Restricted Lung Disease) & General Life Updates!

It's been a while huh? I just went through the worst couple of years of my life. Gosh, I really think I could write a novel but that's not really my thing. Haven't even done a great job of keeping up on this blog. So I'm not going to make some promise that I'll be posting more but what I can promise is that when inspiration sparks me I'll be here to let you all know. I can also say I finally officially bought my own domains so if you ever want to get right back to this blog just type in totallyjen.com or totallyjen.xyz . I actually found out the hard way Facebook doesn't allow for .xyz domains which is just silly but that's a rant for another day. So first let me tell you where you can find me at: Facebook Twitter Instagram YouTube - I don't use this one as often. I haven't really gotten much into video blogs but who knows maybe? I guess stay tuned.  Okay, now that we've got that out of the way. If I had to guess why you've clicked on t