Skip to main content

Long Covid, POTS, and Restricted Lung Disease - Rehab Update

 Hey everyone! 

It's taken a little longer to post than I would have liked. We had a couple colds and the stomach flu plague our house last month and I'm just not starting to feel more human. So a lot has happened since my last post. My primary doctor figured out that I had covid at some point. I've always felt like this is why all my symptoms and everything got worse but I didn't have proof. If I had to pinpoint when I got covid it was in March of 2020. That's pretty much when things went downhill. If you've had covid or think you might have had covid and are having crazy symptoms I implore you to look into dysautonomia. It might be a huge piece of the puzzle you are missing. I was diagnosed with POTS which is a form of dysautonomia and by bringing my HR down to a more reasonable level the brain fog lifted and I've felt much better. I still fight hypertension 10-14 days a month but I was fighting issues 100% of the time. I was just glad to get somewhat of a life back. Just keep pushing and trying for answers. Anyways, the main topic today updates on rehab.

So I do have to skip some classes due to my BP issues. It's just not comfortable to work out when it's high and it scares the nurses plus they do have guidelines for how high it can be. My cardiologist says I can work out even if the bottom number is 100 but they are still really hesitant about it. Mostly because they don't really understand the conditions I have. The class is mostly geared towards pulmonary rehabilitation. All in all, it's been really helpful. They teach us about eating, breathing, exercise, etc. I get to work out for 30 min while I'm hooked up to an HR monitor and they check my BP before, in the middle, and after. It's kind of helped me see how my BP responds to working out and gives me some more confidence. They measure how hard we are working by watts. I'm still not sure what that means but I started out at I think like 35 watts and yesterday I did 69 watts. So I know it's starting to work. 

Now that I've grown more confident I've been hitting up my local YMCA. They have a similar recumbent step bike like I've been using in rehab. I've also been doing leg day there every other day. I just have a really hard time doing leg weights at home that I feel have been impactful and my cardiologist stresses to me how important it is to build muscle in my legs to combat the blood pooling. The weights really push me, but it's worth it. I just take it nice and slow and rest when I need to. I do work on my arms but I have free weights at home and I feel like I can get enough workouts at home. At least until I build more muscle. I tried one of the machines at the gym and even with the lowest amount of weight I was like left with an extremely sore upper body for a couple days. So slow and steady wins the race, right? 

I know I'm making steps in the right direction but it's still incredibly hard. Working out wipes me out, so I'm still not as productive at home. Bryan has been able to start going to work more but he knows if my BP is running high he needs to stay home. It's just too much on me and the rescue meds they gave me knocks me out. I've read it can take some time to get used to them so I don't think it's worth bringing up with the cardiologist yet. I'll give it a couple months at least. Anyways, I'm hoping to keep up the momentum and keep working on gaining more muscle mass and losing weight. Don't give up hope if you have any of the above-mentioned conditions. I know it's tough and life may never be the same but just take it day by day and do what you can.

Stay awesome and have a wonderful weekend!

~Totally Jen


Popular posts from this blog

It's been a year?!?!?

I totally can't believe it's been an entire year since I made my last blog post. I did create my FB Totally Jen page and have been posting short updates on that! Please go out and like my page for the most current updates and inspirations . So let's see to get this blog updated real quick... I found out I was pregnant in July of 2018, and we are expecting our little boy Ethan James about mid-March. The original due date is March 31st, however, due to complications with the pregnancy and prior issues the doctor wants to go at least 2 weeks early. Wish me luck as I head into the home stretch! We've almost lived in our house for a whole year, and we love it! The holidays were so nice having all the extra space for friends and family. We have added two new additions to our household. The first one is Sadie our standard poodle. She is very pretty and full of energy. She's been giving me a run for my money that's for sure.

It's February!

Hey everyone! Totally Jen here and thought it would be a good idea to at least make a new post for February. Time seems to be flying by already. Next thing I know it's going to be January 2020... There's been a lot of emotions for the last few weeks. I'm guessing it's due to my hormones and the weekly shot I have to get to prevent preterm labor. Plus all the stress of a high-risk pregnancy. Poor Bryan! Speaking of pregnancy, so far everything is looking really good. I just got another biophysical profile done today and Ethan passed with flying colors. Next week, we get to see measurements and make sure he is on track. For those of you who are not aware when you have diabetes in pregnancy a high birth weight is common. Last time they checked he was spot on and for the most part, my blood sugars have mostly been in check. So I'm thinking everything should be on track. I've really been biting at the bit to get everything all ready for Ethan but at the same ti